Medication Vendors
I DO NOT buy MUCINEX or other Adams Labs products.
It appears that the people that distribute it are trying to be the only available source of Guaifenesin and they have jacked up the price.
I am BOYCOTTING Mucinex.
Another problem is it did not work for me. Scratched my throat and didn't seem to be slow release, just released some, then later dumped the rest. I felt horrible.
Their actions forced all the long-time generic manufacturers of Guai (more than a dozen) to go back to the FDA for relabeling. None have made it back on the market as far as we know.
It also seems to have forced other types of long-acting meds off the market.
As of 1-08, there is no longer any prescription Guaifenesin with decongestant on the market as far as I know. That means everyone has to pay out of pocket for these very necessary meds.
Meanwhile the Mucinex people are charging way too much for their brand.
Mucinex (Adams Labs) also bought out the Humibid e product, so they don't have any competition.
I also do not buy products from ImmuneSupport.com / FibromyalgiaSupport.com. It seems to me that they are actually a very sophisticated marketing system, selling lots of books, tapes and supplements.
Their web site is all part of Pro Health. They are clogging all the search engine listings with their own multiple site listings. That pushes other useful sites lower down.
Their sites include: Immunesupport.com, ChronicFatiguesupport.com, Fibromyalgiasupport.com, and so many more. You can see these as references on their web pages.
Use your head and make your own decisions about this.
Anyone who is associated with taking advantage of those with FMS,Chronic Fatigue, RLS, etc by restricting access to information or by raising the costs of needed drugs is to be avoided.
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Another thing I find despicable is for any researcher to apply for and accept FMS, CFS, RLS research grant money simply to do a worthless research project. Their motivation seems to be covering their facility overhead, not coming up with answers.
When they also keep publishing the same wimpy results in a variety of medical journals by just changing around the information and the lists of project associates, it really gets in my craw.
They must think no one actually reads or understands the articles.
Anyone who does a "tagalong" as an associate just to be "published" must be an idiot.
Legitimate researchers and facilities, and there are many, need to expose these leeches to their facility heads, to those awarding the grants, to the medical publications, and to the public. The leeches should be required to return funds they have taken under false pretenses, and serve time in jail if possible. A lot of the money comes from your taxes.
It is also criminal for "associations" of all kinds to accept funds for Fibromyalgia research and services, and not use the funds for just that purpose. They are so mired in their administration and fund-raising activities they aren't doing much for those they supposedly represent.
They do not even share that workable treatment and the cause of symptoms has been found. Some cannot even tell you the complete list of symptoms for FMS.
We have written repeatedly to almost every possible association in the U.S. that is related to FMS / Chronic Fatigue/ RLS with this treatment information since the day we discovered it. The information is here - they could read it for themselves. Even if it had ever only worked for one person or just one hundred, or just one thousand, why aren't they at least checking it out? Testing it? We tell everything we know - and make it available free / public domain.
They are letting people suffer needlessly; covering their bulging overheads and fat salaries with donated funds and tax dollars. The donations are given in good faith and trust. The associations need to live up to that trust.
Remember that often researchers can only work on projects for which grants are provided. Tell everyone that will listen that funds should be directed to research related to what are now known to be the elemental parts of this illness.
FMS is NOT a mental illness. Diverting large amounts of money to that area of research is holding back the work that should be done.
In some states you only have a chance for rightfully deserved disability income if you say you have serious depression and pain. The other, equally as common and purely physical, symptoms are ignored.
That skews statistics by making it seem that depression is the major problem in FMS, leading to even more money being diverted to mental health research.
Rank your symptoms by what affects you the most. Be sure that assessment personnel understand, and have it entered into your file.
"The truth will always stand in the light, and only the truth will set us free."
Anne Hillebrand - FibroFix.com
