Total Entries: 954
teresaSaturday, 12/2/06, 7:47 PMI have suffered since 1998 with fibro,some times I think I am losing my mind. My daughter tells me that i am stupid. I need help some times I WANT to die I don’t want the next day to come. THANKS TERESA BARRFrom:tn.Email: spv2bar@charter.netAre you using the FibroFix method? noTrimella “Jo” VincentSunday, 11/26/06, 2:14 PMYou are so formiliar to me. Lived in Oviedo all my life until last year. I had a beauty shop there until 2003, I am a photographer, and I worked part time (30-40 hours per week) at Publix in Oviedo in pahrmacy and photo lab. Do you think we know each other? I was diagnosed with FMS in 2003. It has kicked my butt, and taken my life. I have just started a month ago with a new Dr. I’m on several medications, 300mg effexorxl, 100mg zoloft, 4mg 3x day of zanaflex, 40mg oxycontin 3x day, ambien, prilosec, .5mg xanax 3x day, alegra d 2x a day.The new medication is sibutramine 10mg (generic for Meridia) I am forgetting something. It has started to work in the last week and a half, Thank God. I thought nothing would ever work. I have been through several treatments, until now NO relief. I really haved enjoyed your site. God Bless you for your work and dedication to others. You are truely an amaxing woman. My husband and I are part of a motorcycle misistry, our base there was in Daytona; The Tribe of Judah. I haven’t been able to go on runs in the last 4 years, I miss it terribly. Look the Tribe up on the web, I’m sure you would enjoy reading about us. Ben Priest, our national president and founder has his testimony on the site, it is an awesome read. The president for the Fl chapter of the Tribe is a wonderful woman named Joan DeCamp who lives in Daytona. I look forward to getting back to riding and witnessing, if the treatment I’m on doesn’t work, I will be giving yours a try. Thank you so much for being the person you are!From:Oviedo, Fl moved to Elephant Butte NM Aug 2005Email: Angeltrimella@aol.comAre you using the FibroFix method? Not yet, plan to talk to DrCody & Don SchneckSunday, 11/26/06, 11:02 AMMy sister in law (a dietician) sent us your site address this am. We are very excited (my husband and I)to learn of you. I have FM,and am in a bad way. It has totally disrupted my life in every way. I am very interested in the friendly foods list,as I intend to modify my diet asap.Is there more info. on this subject? Example, I eat Quaker Instant Oatmeal for breakfast,is that OK? I noticed Little Debbies oatmeal was on the OH NO list. Thanks so much for your help, your site,and your interest in helping others with this terrible affliction. We have regained hope. CodyFrom:Ar.Email: codon2@juno.comAre you using the FibroFix method? just startedBillSunday, 11/12/06, 10:41 PMAnne...I’m on the AEN board. I wish I had your patience. By the way you really put adaneedschange in his place. My sister has fibromyalga...I will tell her about your site.From:PensacolaAvril BrunsdonSaturday, 11/11/06, 12:25 PMFrom:South Africa Jeffereys bayEmail: Avrilb@telkomsa.netAre you using the FibroFix method? noKimTuesday, 11/7/06, 6:32 PMThankyou so much for the vast array of information and advise. I have suffered way too long and do plan to go tomorrow and get the AlkaMax strips and see where my PH is and my husband and adult daughter. God Bless you! PS Love the dog 0:)From:MichiganEmail: kspark418@aol.comAre you using the FibroFix method? I am getting ready to!Jim DobsonTuesday, 11/7/06, 1:55 AMFrom:BostonWeb Site: http://www.none.comEmail: dv-Dobson2533@pop-hosting.comSue GibbonsMonday, 11/6/06, 7:41 AMThank you for taking the time to have and update this site, it is very informative and helpful. And it is nice to know that there is someone else that understands. Fortunately, I have a husband and children that are very supportive.From:Princeton, INEmail: gimsbi@gibsoncounty.netAre you using the FibroFix method? some, new diagnosisJulieMonday, 11/6/06, 5:08 AMI was sent this invite, and Im looking forward to checking out your site.I have fibro /CF and anxiety and depression,diabeties and with a bunch more dx to go with themFrom:New YorkEmail: dizzyfrogs64@msn.comAre you using the FibroFix method? noSusan JohnsonFriday, 11/3/06, 9:30 AMFrom:OrlandoEmail: sjohnson_fl@yahoo.comAlice GullyTuesday, 10/24/06, 8:19 PMI enjoyed reading your Testimony!! I haven’t looked at everything on your site yet, but I sure do plan on doing so! Very interesting from what I’ve read so far, it’s just that time has slipped by again and it’s past time for bed! I will definetly be back to explore more of your most informative site!! Thanks, and may God continue to bless you!!From:Louisville MississippiEmail: allyoop_58@yahoo.comAre you using the FibroFix method? not yetJoSaturday, 10/21/06, 12:38 PMThank you for visiting my website and signing my guestbook, since it enabled me to know about your website with info on Fibromyalgia. I haven’t read everything on here yet, but am anxious to do so. I welcome any new information. God bless you for reaching out to help others.From:VirginiaWeb Site: McCracken CoveEmail: gramjomc@verizon.netAre you using the FibroFix method? Noann rayner-kinchesThursday, 10/19/06, 4:07 PMFrom:barberton, ohEmail: akinches@yahoo.comAre you using the FibroFix method? not yet, just read about it last nightcarolyn turbettSaturday, 10/14/06, 9:26 AMI went thru selling my home and traveling the past month. I am now visiting my son in TX before he leaves for Iraq. I was on the protocol for a few weeks before leaving and felt much better. I am now trying to get all the stuff I need to do it again as I am in a LOT of pain and trying to adjust emotionally to giving up my home. I so appreciate your help, Anne and all the tips you have given me to get better. I hope to get rolling with this in the next few days and will keep you posted. sincerely, Carolyn Turbett ps. email has been changedFrom:central illinoisEmail: scturbett@yahoo.comAre you using the FibroFix method? yesStephanieTuesday, 9/26/06, 4:11 AMI am going to start this method TODAY! I was diagnosed with Chronic Fatigue in 1991 and with FMS in 1998. On my own I had managed my symptoms very well through good eating, sleep and exercise. However, I’m in a bad crash of symptoms right now and need something new to get back on track. Thanks for a new method to try!From:Vero BeachEmail: runnerhahn@aol.comAre you using the FibroFix method? Just StartingAnne HillebrandSaturday, 9/23/06, 2:08 AMWe don’t add links that are for commercial sites if we can help it. So I’ll just post this here. I really liked it and thought you might, too. http://www.TheDashMovie.comAnne HillebrandTuesday, 9/19/06, 10:29 AMThanks for posting your experience here, Carrie. I had seen Carrie’s comments on another web site and asked her to post them here as well. She is nice enough to offer to talk to others about it and I appreciate that very much. This web site is free. If I ever hear of any method that works so well that we think it makes more sense to use than the FibroFix method, I’ll use it myself and post that info here instead. AnnieEmail: annehillebrand@bellsouth.netCarrieTuesday, 9/19/06, 9:03 AMAs per Anne’s request, I wanted to post my personal experience with the Fibro & Fatigue center (FFC). After about 9 months of treatment with the center, I can honestly say I had zero improvement and left a much poorer person. They will take every cent and I have yet to meet anyone who has sustained any real improvement. The center and doctors who work there have very little flexibility in their treatment plan and follow what seems like a very strict protocol. I am now seeing a doctor who tailored a treatment to fit my needs and I have seen tremendous improvement. Feel free to contact me. -CarrieFrom:PAEmail: Frecker777@aol.comAre you using the FibroFix method? noJuanitaFriday, 9/15/06, 1:11 PMI just heard about your site and have read the whole thing. I am very interested in trying the FibroFix method.From:VirginiaEmail: nitastoy@aol.comAre you using the FibroFix method? NoBambiSaturday, 9/2/06, 3:19 PMAnne, I just signed in here a few minutes ago but I have been reading more of this and am amazed at how many symptoms I have that I have just chalked up to not liking the weather, not having a job, limits from an old near fatal accident. Anyway, I am going to get checked out and hopefully get some of my life back too. Thank you again for talking to me and for taking the time to post ALL this vital information. God Bless you and your hubby. Love BambiFrom:Altamonte SpringsWeb Site: BambiEmail: BeachBambinFL@aol.comBambiSaturday, 9/2/06, 1:57 PMAmazing Anne,!! I met you at The Boston Fish House last week and I just wanted to thank you for spreading this important information to all as well as your love for Jesus. I have shared this with my friend and pray that it can help her as well. God Bless You BambiFrom:Altamonte SpringsEmail: BeachBambinFL@aol.comElenaWednesday, 8/30/06, 8:29 AMCan you answer a question? Do you take a long acting Guaifesen or the regular from that company? Thank you. ElenaFrom:PhoenixEmail: sbrase@cox.netJANICEMonday, 8/28/06, 1:34 PMI am desperately looking for some pain relief, I am certain I have fibromyalgia, my physician continues to try to connect my problems other things. My question is, how long does it take to get relief? I am completely miserable and almost non-functional having great difficulty trying to work and just keep up with minimal daily tasks due to the pain in my knees, ankles and thighs, just in the last couple of weeks, I have developed tingling and aching in my left shoulder and arm. Any suggestions on how to cope would be greatly appreciated.From:MISSOURIEmail: janicembeckett@yahoo.comMildred PulleyFriday, 8/25/06, 2:30 PMI was on craigslist and saw where you said you were doing research on rsd I have suffer daily due to the constant pain and have for over a year. Please contact me at my email address above thank you MildredFrom:VirginiaEmail: TreasuerFinder@aol.comLynn MeyersSaturday, 8/19/06, 5:54 PMMet you at Habitat Home store, have read most of web site. Very interesting. I see my doctor on Monday afternoon and will discuss with her. A joy to meet you and I sincerely believe you came up to me for a reason, I hope I too can be a chipper at you someday soon.From:OrlandoEmail: lmoriginals@cfl.rr.comJennifer JustThursday, 8/17/06, 12:40 AMMrs.Hillebrand read the August 2006 Remedyfind Newsletter where I was a “Featured Member”( an article that I wrote about all my illnesses) She sent me an e-mail telling me about Ya’lls site so I came to check it out. I printed many pages for Resource, and plus my Brain Fog is working overtime right now. I have bookmarked your site, and I plan on reading everything you have. Everything is starting to make sense.I am so glad that Anne took the time to send me a quick note. I am absolutly miserable, and have been so sick since I was diagnosed at 35. I am almost 41 now, I have SERVED MY TIME....I am ready to be released and it looks as if FIBROFIX is going to PARDON me.MY body feels as if I have been locked up in a prison, I have lost 6 years of my life to this disease. I am very hopeful that your method will give me relief.Oh and by the way....I totally agree with you about Mucinex and Pro-Health....I was on their list for a long time....ONE BIG SALES MACHINE.I opted out on their mailings. It is going to be hard to give up my diet sprite’s, but as long as I can have Iced Tea....less the lemon(which I Love) I will be happy. I need to drink more water. I have cut out ALL CAFFINE years ago, because of my sleeping problems.And to think I used to be a PRO Sleeper, in my early 20’s I could sleep 12 hours easily. Now I am lucky if I get 2 hours, and that is not consecutive.My Dr. and I have finally found something to help me sleep...Seroquel, please don’t tell me I can’t take it..I have been sleeping 8-9 hours a night on it.and I am dreaming, so I think I am getting good deep sleep.I am very excited to find your site, I wish I could continue to read it right now, but I have been sitting here too long, I am hurting, and my eyes are hurting...so I will come back tomorrow. THANK YOU SO MUCH !!!!! You NEW FAN, Jenna* / aka. Windowpain65From:TEXASWeb Site: n/aEmail: Windowpain3400@yahoo.comDeniseSunday, 8/13/06, 7:03 PMFound your site while I was looking for a solution.I was diagnosed 4 years ago.Have tried everything,am going to try the tums.Thanks.From:Boothwyn PAEmail: dwusinich@comcast.netAnne Hillebrand at FibroFixSunday, 8/13/06, 4:09 PMHi, Joyce. I wasn’t angry about it like you, but that was kind of what I thought. And I sure didn’t understand about Grace. And I didn’t seem to need anything at the time. We were healthy, working and happy. I wasn’t in touble, or in church looking; nobody was beating me up about religion. I wasn’t afraid of dying or even what would happen to me after I die. But one God made all of us and everything that is. All love and all that is good comes from God. You can see that in nature where we haven’t messed it up yet. It’s perfect. We’re all gonna die. And when we do, we’ll meet God. He left complete instructions for us. Just because I didn’t know it or understand it or believe it didn’t make it a lie. God came to Earth as His own Son so that we could see Him live, then die, then come back to life, then go back to Heaven. Because otherwise, we wouldn’t believe it was possible to die and have life again. We would not have believed Heaven exists. Or know how much He loves us. Or that God is in control of all that. As for the wars, God says don’t hurt each other. If we obeyed his Word, there would be no wars. All parents would be good to their kids. No one would steal. Everyone would be treated fairly and taken care of physically and emotionally. No one would lie. No one would be murdered or assaulted. But not everyone listens and not everyone hears His Word. I wasn’t a gangster or a bank robber or anything before I accepted Christ four years ago. I was a pretty good person. But I am a different person now. The scripture in the Holy Bible that best describes me now is II Corinthians 5:17 “Therefore if any man be in Christ, he is a new creature: old things are passed away behold all things are become new.¿ I got a clean slate. And I live differently. God promises that if anyone will confess that they are a sinner, which I did, and ask Him to come into their heart, which I did, He will and will live there forever. And He will be their Father and forgive everything they have ever done and everything they ever will do and love them regardless and give them eternal life in paradise with Him when they die. The alternative, which would have happened whether I knew it or believed it or not, would be eternal separation from all love and all that is good. He expects us to love Him, pray to Him and learn and follow His instructions to the best of our ability. He is my Father and I am looking forward to meeting Him. AnnieEmail: annehillebrand@bellsouth.netjoyceSunday, 8/13/06, 2:01 PMYou have an interesting site BUT you have take your religion and shove it.... As far as I’m concerned it’s all a bunch of very very old bible stories that may have or may NOT have ever existed... And all the killings that continue in our WORLD in the name of religion, HOLY WARS...I say Bull Crap to be nice.From:californiaDianne NeedleSaturday, 8/5/06, 5:41 PMHi, I have FMS and Lupus. Unfortunately I cannot get any insurance company to write me and I am not offered insurance through my work. I still do work 5 days a week but it is getting harder and harder. I was told by my doctors to stop working 6 years ago! Your friend Rob sent me the link to your page. I have tried most of that and it didn’t do anything for me. I think the lupus makes it alot worse. I do agree with the foods list, alot of the same stuff sets me off. I’d like to talk with you more if I could. Thanks, DiFrom:OrlandoEmail: dneedle@cfl.rr.compamela sciurbaTuesday, 8/1/06, 8:27 PMI praise God for leading me to you. I found that you are a wonderful woman to talk to. You have given me hope!! I intend on passing this protocol to anyone who will listen.......i know it will work for me because god led me here. Thank You Anne for being so kind to me. You explained things to me so clearly. I’m looking forward to starting this protocol....i hope to continue talking to you in the future.From:st. charles illinoisEmail: maxsy1@comcast.netDaisy SeipleThursday, 7/20/06, 11:10 AMI have been diagnosed twice with FM and I just seem to gain a lot of weight. It is hard for me to work, play or even walk to much. I cannot be out in the sun too long and I get very tired easily. Your information is very insightful and I want to see if I can try to better myself with the same treatment you used. Thank you for your web site.From:Naples, FloridaEmail: dseiple30@yahoo.comMarilouFriday, 7/14/06, 12:29 PMcan’t wait to get on with it!!!From:Valley Forge, PA, UDSEmail: marilou18@msn.comcharlene fenskeWednesday, 7/12/06, 11:39 AMwhat about silic? everything ive read said that products with silicylates interfere with guaifenesin working butt i havent seen you mention that.From:cheektowaga n.y.Email: charlenef@peoplepc.comCathy LowmanThursday, 7/6/06, 6:57 AMHi, A friend sent me to your website .I retired from teaching because of Fibro. Have suffered so much and tried many methods etc. I am excited and overwhemed by your site. Will begin taking steps you suggest but am apprehensive when I consider finding a Dr to listen to me that is within my HMO. Have spent much not covered already. I am 67 years old and want to look forward to some painfree years. It is wonderful that you became a Christian!!!! I too am a Believer and feel it is no accident that I was sent this site. The friend that sent it has been praying for me for 10 years. CathyFrom:Gainesville, Ga.Email: 2auntcat@bellsouthKaren HTuesday, 7/4/06, 8:11 AMDear Anne: I cried as I sat and read your website. I have so many of the symptoms for FMS. My family just doesn’t understand how bad I feel almost continually and it was a great emotional release to know that there is someone who does! I have so many questions I don’t even know where to begin. I find the Ph factor very interesting. I have O+ blood type and have always had an acidic system, which is typical of O’s. I bought a litmus paper Ph kit from the drugstore. However, I am always about 6.0 no matter what I eat. I learned years ago to stay away from sodas and alcohol. Too much fruit and tomatoes give me mouth ulcers. Im I doing the test wrong? I put the strips under my tongue until moist. I have been going to a rhuematologist for the last 2 years. He has been treating me for osteoarthritis, but except for some relief with anti-inflammatory meds (which upset my stomach), I still hurt, ache, am tired, and usually overwhelmed at the pace life keeps me at along with dealing with how I feel all the time. Any advice you can give will be appreciated! Keep up the good work - Karen in JaxFrom:Jacksonville, FLEmail: hls8825@comcast.netLauriMonday, 7/3/06, 4:33 PMHi Anne, We met today in A Helping Hand thrift store in Merritt Island. Just wanted to let you know it was very nice speaking with you. I am purusing your site, and reading your stories. Very intersting. You and your husband are doing a wonderful thing! A true act in the Lord. God Bless you both! I hope our paths meet again soon! LauriFrom:Cape CanaveralEmail: lauri62fl@yahoo.comJulie FryerWednesday, 6/28/06, 2:47 AMI really love your website. I have fibromyalgia and Chronic Fatigue Syndrome and you have so much info that really helped me. I was diagnosed 16 years ago but may have had this a lot longer. Anyway, thanks for all the info and the work you put into it, it’s wonderful. God Bless, JulieFrom:Phoenix, ArizonaEmail: julie_216@sheknows.comMarilouTuesday, 6/27/06, 11:48 PMhave had fms and all its related nastys my whole life. Am now 64. I got diagnosed in 2002 or 03. Im still suffering from it. I had to stop working so now have no health insurance. I can’t wait to read your whole site. will do it tomorrow!!!From:Valley Forge, PA USAEmail: marilou18@msn.comAnita CrothersTuesday, 6/27/06, 2:22 PMThanks to a good friend who passed this web page on to me since he knew I’ve been suffering with FMS, CFS & close to 90% of all possible symptoms you have listed & of which I have known for 16+ years and has been getting worse as I get older.I have been through every test possible before I was diagnosed 16 years ago and have learned on my own what works best for me to handle one day at a time. I have bought and read text books such as “Fibromyalfia & Chronic Myofascial Pain Syndeome” a Survival Manual By: Devin Starlanyl, M.D. & Mary Ellen Copeland, M.S., M.A. on the whole syndrome which inlightened me and my family profoundly and I also had a subscription to a monthly Fibromyalgia Network magazine which kept me informed on new discoveries to try (meds etc.)as well as many articles from lay people as yourself & Doctors.Now I will print out and read what the good Lord has revealed to you. The Lord Jesus has been my strong tower all these years & still is!! God bless your ministry to help others. I look forward to reading your articles and learning something new. Blessings, Anita CrothersFrom:Alamogordo, New MexicoEmail: rogerc16@tularosa,netBarbara D. RamseySunday, 6/25/06, 2:29 AMAnother sleepless night and I was determined to find some answers. Another doctor’s visit and coming home knowing that I was not heard. I start to search the web, one thing leads me to another. Then I found your site. It is all there. All the symptoms - amazing, all the concerns, all the questions. I am printing it all and will read it again later today - hopefully to finally find a name for all this and convince my physician to consider it. Almost as difficult at the symptoms is the frustration of appearing to be a hypochondriac. Thank you for your website. I have hope just seeing it all on the screen and knowing there may be an explanation and a solution. Wishing you a most wonderful day! :<}From:Madison, WIEmail: bdr@chorus.netDianeFriday, 6/23/06, 7:20 AMI found your website quite interesting... if you could, please send an email as I have a couple questions and was unable to find any contact information. Thanks!From:KansasWeb Site: n/aEmail: dkpotts@cox.netAnna H. PossentiThursday, 6/22/06, 10:53 PMSounds wonderful - have a friend with fibromyalgia and I will share this with her. Have you ever heard of using a small trampoline to keep the lymphatic system moving through the body. I have read of this in several books. Seems that the lymphatic fluid does not move as the blood flows in arteries and veins. By these prescribed exercises, the lymphatic system circulates through the body and is beneficial. Believe I have the books here and if you are interested, I will look them up. Also have a book on keeping the ph at a certain level. Don’t drink or anything with citric acid, plus other things. A while since I read these. Great work. Thanks. AnnaFrom:Ft.Lauderdale, Fl. 33324Web Site: Anna H. PossentiEmail: la6565@bellsouth.netAnna H. PossentiThursday, 6/22/06, 11:11 AMJ:ust starting to read. Comment later. Thanks. Interested in fibromyalgia and peripheral artery disease. Can you give me instructions on where to go in your site for PAD?From:Ft.Lauderdale,Fl.33324Web Site: Anna H. PossentiEmail: la6565@bellsouth.netAnne HillebrandThursday, 6/22/06, 9:45 AMWell, Phyliss you are going to be even happier when you read the Right Doctor page. Dr. Harris is right behind Universal Studios on Turkey Lake Road. He’s my doc and the first to use this method. Gets 15 to 20 Fibros every month from all over coming to him as new patients because the treatment works. You get an appointment fast and you’ll love Dr. Tom and the entire staff. He doesn’t advertise that he does this because he’s an Internal Med doc, but he accepts new Fibro patients and treats them great. You could not be more blessed than living here in Orlando. Call me if you want to talk. Anne Hillebrand 407-925-4139From:Orlando, FLEmail: AnneHillebrand@bellsouth.netPhyllisWednesday, 6/21/06, 2:57 PMYou don’t know how I felt and I kept reading your site, I felt like someone really did understand. I have felt like I was all alone in the world in the twilght zone. I tried Guaifenesin for a cold and found it helped but my doctor would not keep giving it to me, she said it was only for 30 days. I had not heard that it helped FMS until I read about you. Do you know any rhemo. MDS in the Orlando area that understand FMS and are taking patients??!!! I have found a bunch of quacks for the most part. After complaining for a long, long, long time with neck problems/pain, finally an MRI showed blood clots and a hematologist told my rhem.doctor to check for FMS. How is that for the expert, a laugh right (I would laught if it didn’t hurt so much). God bless you, I’m glad you are there.From:OrlandoEmail: prbrose@aol.comsaprina kMonday, 6/19/06, 2:38 PMFrom:minnesptaEmail: saprina301@yahoo.comJanice GroveSunday, 6/18/06, 5:22 AMDue to the Agri-Industry using too much phosphorus to raise our food the food is short in copper, sulphur, and zinc. Copper in needed by every cell in the body. The best ‘supplement’ for copper is to wear 100% copper against the skin. The green on the skin is where the body is a little slow on the absorbtion of the supplement. Wearing copper has reduced my pain levels and mental fog. Especially wearing at night is recommended because I read somewhere this is when the body does the best absorption job. The two major pharmaceutical companies now own the farm chemical producers. As a friend of mine said, ‘follow the money’. The pharmaceutical industry is out to take all our money whether it kills us or not.From:Carbondale, ILEmail: janicegrove@hotmail.comAnnieFriday, 6/16/06, 9:49 AMOMG. I have felt awful for nearly a year. Diarrhea,for two years straight. Grind my teeth - for years. Neck pain. Very poor balance, feel unsteady, clumsy. Brain fog- oh yes. Bilateral carpel tunnel. Muscle aches and pains. Fatigue- sleep poorly. My symptoms were present in mild form for years. Three years ago I had the gastric bypass surgery. I lost 190 lbs, which is wonderful. But any surgery is stressful and of course dealing with body image issues, the complete change of eating habits - etcetc, all were stressful, tho ome was “good” stress. After surgery I had non stop diarrhea for two years plus. I was working out, and got very muscular. Last July I started feeling WEAK after excercising and my thigh muscles twitched and shook. I stopped excercising. My surgeon thought it was a Vit B1 deficiency (we malabsorb-) and had me give myself B1 shots.Did not help, tho my thiamine levels were twice normal. Then a couple monthes ago I started having bouts with constipation. Then one night - at work- I felt like I had to pass gas. But what came out was this jelly-like stuff....in my pants. Yikes. I had a colonoscopy and the dx was IBS tho doc was stupid and didnt do a biopsy. My PMD ran some immune tests to r/o lupus, etc. ANA was negative. He thinks its probably fibro. But I have never heard of the saliva test and I dont think HE knows about it either. Can I obtain the test strips???? How???? Because of my surgery I only absorb Calcium CITRATE. But I cant think of a reason why it would be harmful to chew Tums, except for the risk of kidney stones.....but if we dont absorb it, will it help the fibro??????? I am SO thankful I found your site. It was like a bolt of lightning.....80% of the symptoms you list-=- I have. Do you have an online support group? How do I join????? Thank you and god bless you AnnieFrom:Florida, southeasternEmail: minnie3195@webtv.netKaren L. HansonThursday, 6/15/06, 3:45 PMGod bless you for this web site! Our symptoms are identical. I’ve been suffering terribly since 2004. My 20 year, very lucrative, and (previously) enjoyable career here in Orlando went down in flames, and I am on disability. My primary-care Dr. (Vipin Popat, an internist, also at Sand Lake) is sick of seeing me, & thinks I am a post-menopausal, hot-flashing, self-centered hypochondriac. He told me a year ago that I “really needed to see a psychiatrist”. (Turns out that was good advice. I really needed the Paxil to deal with this.) My constant research (books, articles, internet, etc.) very obviously irritates him. I’ve had to beg him for referrals to specialists in my search for answers! (God bless the rheumatologist & the endocrinologist...they have been somewhat helpful with symptoms.) The only reason I haven’t changed primary-care docs is that I assumed they would all just think I was a crazy woman. I’m going to see if I can meet with Dr. Harris. I’m in so much pain, I’m crying now as I write this. I can’t stand the person I’ve become...the constant suffering is consuming. I had the carpel tunnel thing last year, with a severe trigger finger turning my right hand inward...it went away with Phys. Ther. For the last two months, the worst pain has been in my back. I’m in Phys. Ther. again, and I had an MRI of my back a few days ago, plus another MRI of a large lump above my left knee. I read about guafenesin (spelled right?) on another site...sounds like a miracle. You say Dr. Harris, here in Orlando, prescribes this?From:Orlando, FlEmail: hansonkar2@earthlink.netTotal Entries: 954
Meg King Wednesday, 5/24/06, 5:57 AM Thank you for the email warning about Semedical Healthcare, Inc., Cordova, TN. When it comes to our health we need to stick together and report any misrepresentations regarding, medication, suppliments, nutrition, medical scams and ecetera. WWW.FIBROFIX.COM is a shining example of caring for its loyal fans. I am impressed. Consider another web site to research or report medical fraud called QUACKWATCH (www.quackwatch.org). Semedical Healthcare, Inc., belongs on their “QUACK list!” Warm thoughts to everyone that uses FIBROFIX.COM and a big hug to Anne and Dale. Thank you for all your hard work. QUACKWATCH - Medical Fraud http://www.quackwatch.org/ Arthitis Support Group of South Lake County, Florida NEW BLOG: http://www.arthritsgrp-slc.blogspot.com From: Clermont, FL Web Site: Arthritis Support Group of mSouth Lake County, Florida Email: arthritisgrpslc@cfl.rr.com
Anne Hillebrand Tuesday, 5/23/06, 9:10 AM Please note: If you have Sjrogren’s Syndrome, or if you have Complex Regional Pain Syndrome / Reflex Sympathetic Dystropy, I would like to talk with you. Especially if you are in the Orlando area. I may have some information that will benefit you. Thanks, Anne From: Orlando, FL Email: annehillebrand@bellsouth.net
Rebecca Godwin Saturday, 5/20/06, 4:31 PM It’s been a while since I’ve had a real “episode” of Fibro. At times I wonder if I really have it at all - or is it just in my mind as one doctor said. Thanks for your website and your information! From: Kissimmee, FL Email: tornadofamily@yahoo.com
Betty Friday, 5/19/06, 1:52 PM Took me all afternoon to go through all your material...great info...going to try your way...hoping the other meds I’m on will still enable me to try...Thank you From: PA Email: nj_babyblue@hotmail.com
Meg King Friday, 5/19/06, 11:22 AM Dear Anne: I just found your review on the Internet, Fibromyalgia MD web site and then I checked out your web site - FibroFix.com. Thank you very much for all the information you supplied for those of us that are still lost in the forest searching for the answers as to why we are in so much pain, confusion, chronically exhausted and so much more. I have experienced a lot of what you have gone through too. Once again ¿ Thank you, girlfriend! I am sharing your FMS, CFSA, RLS, and pain “tips and tricks” with others in our Arthritis Support Group in South Lake County, FL. Sincerely, Meg King Arthritis Support Group of South Lake County Home Phone: 352-243-2098 Email: megking@cfl.rr.com Arthritis Support Group of South Lake County Web Page: http://home.cfl.rr.com/arthritisgrpslc/ (TBA June 2006) Our Blog Page too! http://arthritisgrp-slc.blogspot.com/ From: Minneola, FL 34715 Email: megking@cfl.rr.com
Sara Williams Friday, 5/19/06, 5:29 AM Just loved your web site and all the IMPORTANT information. I have CFS, chronic fatigue syndrome, but have seasonal Fibro. I have known for years that PH is very important, and your web site has convinced me to follow that factor in my health closer. We winter in Pass A Grille (southern part of St. Petersburg) and would love to meet you both some time. God Bless, Sara Williams, a Sister in Christ From: Greensboro, NC Email: mwilliams6@triad.rr.com
Ken Sunday, 5/14/06, 1:02 PM I am very interested in finding out more about this. From: Columbus, Ohio Email: klinkins@msn.com
Anne Hillebrand Friday, 5/12/06, 5:20 PM Don’t buy Hyaluronic Acid. You most likely already have too much in your body. Check your saliva pH. Web Site: FibroFix
Nelwyn Schnell Thursday, 5/4/06, 10:32 AM Thank you for all the info on your site. My daughter is from Orlando and found your site and sent it to me. Because of brain fog I have only read a portion. I can’t concentrate for too long at one time. AT the health food store they have hylaurnic acid in a spray bottle. I’m thinking of trying it. I take many, many supplements. I plan to read more of your info later. Again, thank you. Sincerely, Nelwyn Schnell From: Keene, TX Email: JVSchnell@aol.com
Beth Monday, 4/10/06, 2:14 PM I truly believe the Lord lead me to this website. I have suffered from FMS & CFS for many years now. It had about beat me completely down till I was about to give up all hope. So many tears, prayers and yes...anger! Why me, Lord? I try to do so much for you, trying to live as you have me too. How can I get out and help others if I am in so much pain and in bed suffering all the time? So now, I am really mad! Mad enough to get up....research for anything!! Something! I refuse to let this thing destroy the rest of my life! The Doctors have been my worst nightmare! What’s wrong with all these so called “doctors”? Bet they would feel differently if it was them or their close family members suffering like us. Been on Anne’s remedy for about 2 wks now. Something’s happening. Not sure yet...but know it’s better. Just staying so tired, so sleepy...more than usual of course. But have discovered that it is from my body working so hard getting rid of all those toxins. Made me feel better when I found this out. Thanks Anne!!! I am going to keep this up and see how much better I get! From: North Carolina Email: jbbeacham@cox.net
Tricia Schlosser Sunday, 4/9/06, 7:01 AM Hi Anne, I found your web-site Friday and I was so excited. I was diagnosed with Myasthenia Gravis in 1989 and Fibromyalgia in 2001 as well as hypothyroidism, allergies, asthma, rhinitis. I also have protruding discs in the cervical and lumbar areas. Needless to say I’ve been hurting! I went to Walgreens yesterday and bought the Walgreens brand of Mucinex with 400 mg of Gaui and purchased Sudafed non-drying sinus with 200 mg of Guai and 30 Pseudoephedrine AND the TUMS Tropical Fruit Ultra. I started taking everything yesterday afternoon and I must tell you that this morning my cervial pain has improved so much, my balance is much better and I just FEEL BETTER all over!!!!!!! I would like to know if the TUMS will interfere with my thyroid medicine and when should I test my PH levels? Thank you so very much for sharing your discoveries! You are truly one of God’s dearest angels and I will be recommending you to others that suffer with fibro. God Bless!!! From: Spring Hill, Florida Email: lamalu@aol.com
Anne Hillebrand Friday, 4/7/06, 11:02 PM Before the weekend we will have our 89,000 th “hit” to www.FibroFix.com (majority of the total hits have come during the past 2.5 years). Big Thanks to those who care enough to keep passing the word. There are so many who suffer so much. Annie Email: annehillebrand@bellsouth.net
Eva Kendall Tuesday, 4/4/06, 12:46 PM I am diagnosed with fibromyalgia, and Have been for several years. I Am 40 years, and have three girls. It gets very hard at times, but I have finally found medication that helps me. It has took several years but I have finally found medicine that works for me.People who do not have this, has no idea what we have to go thru, every day. Not only phsically, but mentally as well. Thanks a lot, Eva From: Hollow Rock, Tennessee Email: evamkendall16@yahoo.com
Richard N. Keene Sunday, 4/2/06, 2:53 PM Hi, I faxed my Doctor the medication part of your Website last week and he called me today (Sunday), and said it was very informative and gave me an Rx for Guai.and told me to get 30mg. Sudafed to take along with it. His name is Robert W. Mosca. D.O., P.A. located at 807 STATE ROAD 44, New Smyrna Beach. Tel. 386 428 5554, FAx 386 409 7971. He is a young Dr. who listens and reads the info. that I give him (which is unheard of in this part of Florida) I had the experience of taking Vicks Formula 44 for a cold years back and I noticed that the pain was subdued when ever I took the Med. I had told the Dr. I was going to at the time and he reluctionly gave me 4 bottles of Guai. that he had as samples, needless to say it didn’t work, reading your site I learned that it is the combo of the Guai. and the antihistamine is the key. I have been suffering with this for well over 15 years and was even lucky enough to get SS disability because of it. I’m 69 years old and have lost all those years of productivity due to this ailment. God Bless You and your selfishness to spread this information! Sincerely, Richard N. Keene From: Edgewater, Fl. Email: molehill@cfl.rr.com
Monika Monday, 3/27/06, 3:22 PM Hi Anne, I don’t know if I missed it or if the about you page is new from your update, but I liked reading a little about you and get to know you a little better. Keep up the wonderful work. Hugz! <a href=”http://thescottsltopcities.com/fibromyalgia.html”><img src=”http://thescotts.topcities.com/enjoyedvisit.jpg”> From: La Crosse, WI Web Site: Roadangel’s Paradise Email: monikascott@charter.net
Deanne Monday, 3/27/06, 9:10 AM Hi, Love your site and will try the camphor spirits today! Please check out my website...I have my Fibro story, how I use yoga for the pain, info & tips on social security disability, tips on how to live dirt cheap while waiting for social security to approve you, lots of articles about FMS, a Fibromyalgia Forum and a very long page of freebies. Please visit my site and sign my guest book too! Thanks!!! Deanne From: Louisiana Web Site: Yes! Fibromyalgia Hurts! Email: Deanne@YesFibromyalgiaHurts.com
Anne Hillebrand Sunday, 3/26/06, 10:49 PM In the next week or so the hit counter at FibroFix will pass 88,000. Thanks to all who continue to spread the word. On the last day, Jesus will say to those on His right hand, “Come, enter the Kingdom. For I was hungry and you gave me food, I was thirsty and you gave me drink, I was sick and you visited me.” Then Jesus will turn to those on His left hand and say, “Depart from me because I was hungry and you did not feed me, I was thirsty and you did not give me to drink, I was sick and you did not visit me.” These will ask Him, “When did we see You hungry, or thirsty or sick and did not come to Your help?” And Jesus will answer them, “Whatever you neglected to do unto one of these least of these, you neglected to do unto Me!” Email: annehillebrand@bellsouth.net
Anne Hillebrand Sunday, 3/26/06, 10:33 PM Of the many people we hear from each week, a few sign the guest book. Thank you so much for letting us know you found us; each of you has received an individual response from me. Many just call or email me directly with comments or questions. To those who don’t sign in, email or phone, I just want you to know how glad we are that you found the site. If there is ever anything I can do to help, please let me know. We hope you will also pass the site address and information along to everyone you can. And to those who email or call directly to tell us how you are doing, congratulations and thanks for letting us know. It’s why we do what we do. The site is all free. Any help we can offer is free. It’s here because you are there. And even to those who emailed to say that we are crazy because no treatment works for Fibromyalgia, thanks. It gives us an opportunity to respond and help you understand what this treatment method does and how it works. THANKS! In HIS grip, Annie From: Orlando, FL Email: annehillebrand@bellsouth.net
Beth Thursday, 3/23/06, 9:12 PM From: NC Email: jbbeacham@cox.net
Kathy Ready Tuesday, 3/21/06, 5:36 PM From: Bryan, Texas Email: mikere1964@yahoo.com
cynthia ann kelly Monday, 3/20/06, 8:03 PM hi i just found this website i have been suffering 15 years i have graves disease then had radiation then was in hospital with myapothy from thyriod levels went to 80 that is my tsh now i have partial empty sella in brain low cortisol 8 bulging disks in spine 2 herniations in neck on nerve root celiac disases positive for ebv the list goes on and on please pray for me i am a single mother of a 11 year old daughter i can only work 14 hours a week i ama hairstlylist my pain doc i have seen for 4 years never asks how i am and keeps me on same meds 2 ten oxycodone er 2 ten mg of lorcet i told him the generic oxy makes me sick also candida of tummy gastritis gerd ibs colom polps 1 pre cancer now sever head pain neck pain whole spine pain lower back and mid back pain please write back if you can love cynthia i need to be a mother again my parents are taking care of my little girl 70 percent of the time thank you.. From: 538 waltz mill rd ruffsdale pa 15679 Email: haircuttinpro@yahoo.com
Wilna J. Cook Sunday, 3/19/06, 4:35 PM My fribo has been a problem for the last fifteen to twenty years. Just lately it has gotten more sivere From: Fresno, Ca. Email: Wilnacook@mybluelight.com
Lynne Snow Thursday, 3/16/06, 7:51 PM I’ve been sitting here reading everything you’ve written on your website and I can’t begin to imagine the pain you have endured over the years. I have some symptoms, not nearly as severe as yours, but it does get bad at times. At least I don’t think I’m crazy anymore. Thank you for sharing your discovery of a way to function doing everyday activities without severe pain. Good luck and may God bless. From: Greensboro, N.C. Email: lynnesnow1229@yahoo.com
Rhonda Fleming Tuesday, 3/14/06, 12:02 PM I am a pain management RN at a small hospital and several of the staff here have requested info on fibromyalgia. I am already a believer in guaifenesin for my 39 year history of daily headaches. I came across you web site and intend to share your info with the staff. Thanks and congrats to you. From: Ardmore OK Email: rjfleming@ok.mercy.net
Demetra Sarris Sunday, 3/12/06, 3:01 PM I don’t understand what you are supposed to take. Does everyone take the same amount? Please explain because I am on the Guaifenesin Protocol now and have been for 18 months. My doctor will give me the prescription if I tell him. Thanks, Demetra Sarris From: Birmingham, Al Web Site: none Email: Psarris1@aol.com
Shirley Jedele Saturday, 3/11/06, 5:52 PM Great Website - lots of help for us with Fibromyalgia. From: New Port Richey, FL Email: sjedele@tampabay.rr.com
Kat Rogers Saturday, 3/11/06, 11:39 AM Hi~ I’ve been suffering from fibromyalgia for more than 3 years now. I did The Guaifenesin Protocol by Dr. R. Paul St. Amand for almost a year and a half. It made me feel worse, without ever really feeling much benefit. My pain level is almost always around 7-9, and I’ve hit 10++ a few times but I don’t really want to keep that in memory! I’ve been doing acupuncture for about 3 months. Still searching for a way to feel better... I KNOW IT’S OUT THERE, God told me so!!! I’m a patient person, and now that I’ve printed out the pertinent information I can give your treatment protocol a shot. Thank you for sharing your experience and knowledge~ I greatly appreciate it! God Bless you, Kat From: Los Angeles, CA Web Site: n/a Email: fairykat@sbcglobal.net
Joan Hoekema Monday, 3/6/06, 7:17 PM Interesting and informative...........FM not yet diagnosed, but I’m nearly 100% sure that’s what my problem is. (I have an appointment with a rheumatologist on the 15th). Thank you for sharing what has worked and what hasn’t, and why. I will read this again and again as I work at getting well again. Bless you, Joan Hoekema From: Puyallup, Wa. (near Tacoma) Email: Pajohoe@comcast.net
Sharon Monday, 3/6/06, 6:34 PM I love your site, its very helpful.. From: Sanford, Florida Email: shar1151@aol.com
Lisa Monday, 3/6/06, 1:43 PM
Brenda Rogers Friday, 3/3/06, 1:55 PM I have had fybromyalgia since 1997. I take Celexa & Ultram for the depression and pain. Your information was informative and I will share it with my Dr. I am seeing a new Dr. I think he will be interested in the information I have obtained from your website. Thank You. From: Moncks Corner, S.C. Email: carrway@prodigy.net
Donna Ferguson Thursday, 3/2/06, 9:32 PM I was diagnosed 2 yrs ago with fibro. I have several friends who are much worse than I am. Thank you for taking the time and share your story and information. From: Kentucky Email: mail2daf@yahoo.com
Eva MAria Kendall Thursday, 3/2/06, 10:04 AM From: Hollow Rock Tennessee Email: evamkendall16@yahoo.com
JAN TRUEBLOOD Monday, 2/27/06, 8:18 PM I STARTED HAVING PROBLEMS AFTER A HEAD INJURY ALMOST 6 YRS AGO. NOW I CAN NO LONGER WORK. AND OF COURSE, I‘M IN A FIGHT WITH SOCIAL SECURITY. UNFORTUNATLY THE NEUROGALIST I‘VE SEEN FOR THE HEAD INJURY REFUSES TO WRITE SS A REPORT THAT I CAN NO LONGER WORK!! THAT IS WORKING AGAINST MY WHOLE CASE!! I NEED A NEW DOCTOR IN THIS AREA. ANY HELP OUT THERE? From: PEORIA,AZ Email: chgogirl@cox.net
Elizabeth Chadwell Thursday, 2/23/06, 10:14 AM After 8 years of a bad case of fibro I was coming to tears after yet another flare up and found this website. I’ve been thru countless Dr.’s and deep denial of the fibro diagnosis and treating just the symptoms. I knew there was an underlying cause for the various symptoms. First time in a long time that I’ve had any hope of being whole again. I will be starting this treatment tomarrow, Thank you, Sincerely, Liz. From: Cleveland, ohio Email: d.chadwell@sbcglobal.net
Lori McCann Tuesday, 2/21/06, 5:45 PM always looking for new info to help me. thanks From: montana
Anne Hillebrand Monday, 2/20/06, 10:30 AM Sorry - no newsletter. There is no staff, no budget, no fancy computer programs. Just me. Dominie Bush has a great Fibro news letter, though. You can find her online. Also the CF-Alliance has one. But as far as we know - this site is the only one that can tell you how to reverse the symptoms of FMS, CFS and RLS. Thanks for signing the guest book; we love to hear from all of you. Annie From: Orlando, FL Email: annehillebrand@bellsouth.net
Marie Monday, 2/20/06, 7:24 AM I would like to be on a newsletter online If you can put my name on for too. thanks....Marie Gaild922@yahoo.ca is my emailaddress From: Ottawa Ont Canada
eleanor Hammond Thursday, 2/16/06, 5:08 PM hi i am a fibro case myself, i find your web site very inspiring. all the best to everyone who put it together, thanku From: irymple, australia Email: ellie52@ozemail.com.au
Tracey Thursday, 2/16/06, 6:20 AM All of these fibromyalgia symptoms began the day I took my first Levaquin pill (an anti-biotic in the class known as ‘Fluoroquinolones’. The exact same thing happened to my friend, who began fibromyalgic symptoms one month after taking Cipro, also in the same class of Fluoroquinolones. If you read the side effects on either of these drugs (all 10 or so antibiotics from this class will have the same adverse reactions) you will see every single symptom of FMS on there! I believe if many of us trace back our prescription history, we will find a connection! The first Fluoroquinolone drug was introduced in the 1950’s, and since that time many, many of them have been pulled off the market due to fatalities and overwhelming complaints of severe adverse reactions. It is strongly believed to be the cause of The Golf War Syndrome and it is also responsible for the continued sufferings of the Postal Workers who were treated with Cipro for Anthrax Exposure. Please trace your prescription histories! If there is a common cause for FMS...and we can prove it - maybe we can pull these drugs off the market or at least limit their use to life and death situations only! Thank You, Tracey. From: Chicago Web Site: FQVictims Email: imalittlehotti@yahoo.com
trisha McCracken Wednesday, 2/8/06, 1:39 AM I am in so much pain I can hardly type this. I’m looking for some fast help. glad you are around. your husband sounds great! From: dallas, tx Email: trishamccracken@comcast.net
debbie Tuesday, 2/7/06, 10:59 AM From: tennessee Web Site: utvoldeb Email: utvoldeb@bellsouth
Georgia Davis Monday, 2/6/06, 5:36 PM Anne, my son Sam and I just met you today at Arby’s. I knew it was a devine appointment. Sam said he thought so the minute you spoke to us. Thank you for the time you spent talking with us. I’ve just begun exploring your website and have high hopes. Perhaps we can get together after I move to College Park later this month. My thanks to you and your wonderful husband for putting this site together. Georgia From: Orlando Email: gmdchild@earthlink.net
JESSICA Thursday, 2/2/06, 9:20 PM I am so glad I ran across this site, it gives me hope. I’ve had the worst time of my life, I just had a full Historectomy and was diagnosed with ankylosing spondilitis as the most recent illness. I have had to live with Fibromyalgia for the last 5yrs and it’s changed my whole life, the amount of pain I have lived with is getting absolutely intolerable specially after the recent discoveries. I’ve been through some pretty radicle treatments from taking up to 5 antibiotics at a time to now taking quimotherapy for the ankylosing spondilitis, with so many issues it’s hard to determine which one is is the one giving me a hard time, but i know this that, ever since before I was diagnosed with Fibro there has not been a day without pain, so I am so willing to try anythng at this point. What you say about the acidity seems to make sence. If there is anything that I could help with please let me know and THANKS FOR YOUR HARD WORK ON THE SITE. Sincerly Jessica Shaw From: SHAW Email: jzlove916@sbcglobal.net
Sydney Greaves Monday, 1/30/06, 10:32 AM I have been tentatively diagnosed with fibro, it started with an infection of Fifth Disease caught from my then 1st grader in June 2001. Took 3 mos to get feeling and strength back in feet and hands, but wrists remained weak. The 911 attacks I think were what sent me “over the edge”. I have had great doctors, very supportive and willing to try things, so I feel very lucky. Even so, I did not find the right “mix” of treatments until late 2003 -- Paxil, Tizanadine (muscle relaxer), multi-vit, and Lysine. I am much better than I was, people we saw in UK 2 years ago were amazed at the change in me, but I still have to be careful. I am stocking up on Tums and getting rid of my diet soda (sob!) with great hopes. Thanks for your story, and thanks to my sis in FL for sending the site to me. From: Upstate New York Email: sgreaves@mag.rochester.edu
Anne Hillebrand Tuesday, 1/24/06, 9:28 PM Thanks for the encouragement, Glenda. The site is here for you. Because of the internet and the good people at Homestead (where we rent our web space) you seem just as close as someone right down the street. But it still is amazing when we get an email from someone in Tazmania saying that they were able to walk their dog themselves that morning for the first time in 2 years; to know that we were able to help make that happen. All we ask is that you get better, let us know if there is anything we can do to help, and then PLEASE tell others. Like it the quote from Dale on the front page - “Until they all get help, we go broke or we drop dead trying.” In HIS grip, Annie From: Orlando, FL Email: annehillebrand@bellsouth.net
Glenda Abasta Tuesday, 1/24/06, 5:42 PM I am really grateful that i have found a website from a FMS survivor dedicated to FMS sufferers like me. Your effort to reach out to people with this condition not only in America but throughout the world to bring hope and help of being free from pain and lead a normal life is quite astonishing. I can see that it was God who made you instrument, by letting you experience it, find a treatment for it, and eventually share your discoveries to other people who suffers. Godbless, and long life! From: Saipan CNMI Email: gcabasta@yahoo.com
Keren Palethorpe Monday, 1/23/06, 1:56 AM I found your site by sheer luck and I think it may be what I’m looking for. I have had similar symptoms for 2 years or more and the doctors don’t seem to be getting anywhere besides charging me a lot of money. I’m going to approach my doctor and see if he will support me while I try this out. I applaud you for what you are doing here because sometimes people have to find the cures for themselves. I believe we are responsible for our own health and doctors are there to help us but unfortunately some doctors have a “god complex” and think that if it’s not in their medical books it’s just not so. This delays finding cures or suitable treatments for people like us. Keep up the good work Regards Keren From: Australia Email: kerob1@optusnet.com.au
lynda evans Sunday, 1/22/06, 4:26 PM I am looking for help for trigger point pain. My leg muscles have been tight and in pain for more than one year and I can’ get any relief. From: nags head, n.c. Email: mslyndaevans@yahoo.com
Anne Hillebrand Saturday, 1/7/06, 7:51 AM That’s my white Explorer you saw.--- It says “Fibromyalgia? www.FibroFix.com” on the back window glass.--- I was in Kissimee seeing a friend. She introduced me to a Christian chiropractor (Dr. Travis) in Kissimee who learns everything he can to help his patients.--- Later we met up with a microbiologist she knows and we all shared ideas.--- (It was great to meet you, too, Dr. Amy.) --- You are very blessed to be here close. ---- Dr. Harris is right behind Universal Studios if you need a doctor. --- And I live just a couple of miles east of there. ---- Everything we have learned is absolutely free on this web site. --- It’s public domain - you can print it off, email it, etc. --- It’s the only treatment that tells you how to reverse the symptoms and why it works. ---- There are hundreds and hundreds of us now using this method. ---- As far as I know it’s the only thing that really works. ---- Read every word of the web site. Print off a copy of the Tricks and Tips, Treatment Outline, etc to keep handy. --- Start with the Tricks and Tips. ---- Do just what it says. Every part is so important. ---It’s the combination that makes it all work. Let me know how you are doing and if you have any questions. --- And please tell others how to find the web page. --- In HIS grip, Annie From: Orlando, FL Email: annehillebrand@bellsouth.net
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ANNE SMITHSaturday, 1/7/06, 5:31 AMI saw a local ad, on one of your vehicles, and now realized, I have been here before. but, due to fog, (need I say more ?). Anyhow, I like seeing local supports close by.From:KissimmeeEmail: zippo727@aol.comMiss Trish Cecilia SalasSaturday, 1/7/06, 12:03 AMI have finally accepted the fact that I have fibromyalgia......MD’s have changed the cause of my now known illnes various times..... I have felt worse with traditional medications, with the exception of natural supplements, physical therapy...etc. Tonight after four hours of reading about this fibromyalgia I realize there is hope to reverse this condition..... I am ready to take charge of my life and condition.... I will have to educate myself extensively....I do what I must to get well.... No more passive patient........ Will you help me... I have been of work for short of four years?From:Los Angeles CaliforniaEmail: trish_salas@yahoo.commickie rosemanFriday, 1/6/06, 4:02 PMMy hat is off to Anne Hillebrand and Dale for their kind contribution to a most worthy casuse, which is always desperately in need of the info [provided in the Fibro Fix articles. Their caring and generosity is worthy of a reward in Heaven. Thank you. God Bless.From:The Big AppleWeb Site: Don’t have one.Email: mickion2@mac.comAnne HillebrandThursday, 1/5/06, 4:37 PMHi Fern! That’s my Explorer you saw. I was in Celebration to pick up some paper work. We try every way we know how to reach people with FMS, CFS, RLS. In your case we were able to do that. If your doctor won’t listen, Dr. Harris is right behind Universal Studios in Orlando. He was the first to treat using this method, and I was the first patient on it. We are all so blessed that he listened. Start with the Tricks and Tips - DO them. It’s the combination that makes everything work. We’ve had people get up and running the same day just using that. You can get Walgreen’s brand of Guaifenesin if you need less expensive. It’s not slow release, but we don’t feel that Mucinex is either. And FibroFix tells any places we know to get better or less expensive meds, etc. If you need the prescription meds, your doctor should help. Get better, let me know if you need anything, and TELL OTHERS. Millions of people are crying in their sleep and don’t know about this effective treatment method. All the info is free and we aren’t selling anything. In HIS grip, AnnieFrom:Orlando, FLEmail: annehillebrand@bellsouth.netFern AronsonThursday, 1/5/06, 2:53 PMThanks for your informative site. I have been battling fibrom. for many years. I hope my doctors will be receptive to this info. This e-mail address is really my mothers who lives in Celebration (Orlando). She saw the web site on the back of a white SUV parked in Celebration. I have been having horrible sinus problems and have been on mucinex as of late for this. I have tried so many things to treat my fibro. I hope I can get cooperation from my doctors.Thanks for your info. Fern Aronson ( I can be reached on the e-mail address above.)From:St. Augustine, FLEmail: ma@smartcity.netFrank JohnsonSunday, 1/1/06, 1:16 AMFrom:BostonWeb Site: Frank JohnsonEmail: 8653bbd@ishp-corp.comAnne HillebrandSaturday, 12/24/05, 10:30 PMAwesome news! Our pals’ grandbaby girl, Kaitlyn Michael Smith, who was born Oct 16, at 27 weeks and 1 # 10 oz, now weighs 4.5 #!! Praise GOD from whom ALL blessings flow. Mike is my long time friend who led me to Christ in 2002, and made my baptism in Oklahoma possible in June 2004. Baby Kaitlyn Michael is in good hands at Baylor U NICU in Dallas, TX. Please continue to pray for progress for this very special little one, strength and safe travel for her parents Steve and Christy, and grandparents, Mike and Karen.Email: annehillebrand@bellsouth.netMichelle HarperTuesday, 12/13/05, 9:08 PMHello, You spoke with me and my 12 yr old daughter one late night at the RaceTrac gas station on Ornage Ave. Thank you for this info for me and my mother.From:Orlando, FLEmail: soccermom29@cfl.rr.comTammy HammondsFriday, 12/9/05, 7:19 PMI met you at the Racetrac the other night while I was getting gas. Thankyou for letting me in on all this useful information. Your website is great and I hope it will help me with this horrible disease. Tammy Hammonds.From:OrlandoEmail: tamalama44@hotmail.comChasityFriday, 12/2/05, 11:33 AMI am so excited to try this! Very good informationFrom:Orlando, FLEmail: clopez11@cfl.rr.comwendy mousseauTuesday, 11/29/05, 9:36 PMI’ve just been to the doctors (rheum.) and he said that what I’ve been experiencing for almost three years now is fibromyalgia. I’ve been seeing him regulary during the course of everything that’s gone on with me. An ache here, a pain there. Not able to walk all that well. Get’s worse then gets better. I am having a hard time accepting this for what it is. I am not into not feeling well enough to live live without having any set backs (the aching, tired feeling I’ve been experiencing moreso over the last month or so and it seems to be getting worse in some areas moreso than others. I am a single mom with two young, active children. I want to be able to live a normal life and do the things I enjoy like getting out in the yard to cleanup and straightening up inside and getting ready for the holidays. I don’t mean to complain but I am really tired of feeling this way. Any help, hints, tips and good advice will be greatly appreciated. Thanks Wendy MousseauFrom:north attleboro, massachusettsEmail: w.mousseau@verizon.netTraci DeanMonday, 11/28/05, 8:18 AMThis site was referred to me and though I haven’t had much time to research it, I am excited.From:FloridaEmail: tracidean331@yahoo.comAnita MurrayFriday, 11/18/05, 8:13 PMI like your site and it is honorable that you are doing everything for no profit.From:WisconsinWeb Site: FibromyalgiaHope.comEmail: anita@fibromyalgiahope.comAnne HillebrandSunday, 11/13/05, 1:30 AMJust had our 80,000th “hit” to www.FibroFix.com. It took 5 years to get here, but most of the hits have been within the last couple of years. Thank you all for sharing the address and helping others learn about and get help for Fibromyalgia. Anne & DaleFrom:Orlando FLEmail: annehillebrand@bellsouth.netBettyThursday, 11/10/05, 12:54 PMWonderful reading about your coming to our LORD...may you continue in your spiritual growth and physical healing. I too am a Christ follower and hope to find some physical help here.From:PAEmail: nj_babyblue@hotmail.comBettyThursday, 11/10/05, 12:52 PMFrom:PAEmail: nj_babyblue@hotmail.comAnne HillebrandTuesday, 11/8/05, 12:12 AMGreat news! Our pals’ grandbaby girl, Kaitlyn Michael Smith, who was born Oct 16, at 27 weeks and 1 # 10 oz, then lost some weight, now weighs 2 #!! Praise GOD from whom ALL blessings flow. Mike is my long time friend who led me to Christ in 2002, and made my baptism in Oklahoma possible in June 2004. Baby Kaitlyn Michael is in good hands at Baylor U NICU in Dallas, TX. Please continue to pray to ask for progress for this very special little one, strength and safe travel for her parents Steve and Christy, and grandparents, Mike and Karen.Anne HillebrandMonday, 11/7/05, 11:56 PMHELP!! Would like to use the South Beach Diet. Seems like a lot of recipes have tomatoes, lemon, etc in them, as those are usually good diet foods. But we can’t have them due to acidity. And I need tea for the caffiene, but it’s not on the ok list. Anyone know of a way to get South Beach Diet recipes that would work in our situation? Or what to substitute when the recipe calls for acidy stuff? We are not good cooks, so this is not something Dale and I can figure out for ourselves. Sure appreciate any help. Maybe we can add the info to the web site. AnnieFrom:OrlandoEmail: annehillebrand@bellsouth.netRich KeeneMonday, 11/7/05, 8:41 AMNo comment yet, just discovered your site.From:Edgewater, Fl.Email: molehill@cfl.rr.comAnnieWednesday, 11/2/05, 9:44 PMHad a great trip. .. Weather in Utah was gorgeous, and the mountains were an amazement. .. #2 boy’s house is almost right on top of the Wasatch Fault. .. On “the bench” at Cottonwood Canyons in Salt Lake City. .. Miss Sassy Belle Devereaux dog was a champ on the flight out and back. .. Big thanks to all at Delta Airlines for making it easy to bring her along. .. The attendants are terrific!! .. We are very glad to be back home in the South, though, with low altitude, high humidity, okra and sweet tea. ..From:Orlando, FLWeb Site: FibroFixEmail: annehillebrand@bellsouth.netAnne HillebrandWednesday, 11/2/05, 9:24 PMWe have a Forum now. It’s called FibroFix Forum I’ll add a link from www.FibroFix.com to it as soon as I can. http://hostedboard.com/phpbb/?mforum=annehillebrand Please tell others that this forum is open, and it’s for you. Because there is no for-profit motive, we want it to be an excellent source for sharing and learning. Any ads are from the free forum service we are using, not us. We hope you will add categories as you want. The better divided and organized it is, the better for all. Our guest book just is not adequate for that. Please post any place you like, and feel free to email or phone me any time. Annie p.s. We just had our 79,000 th “hit” to www.FibroFix.com You keep sending them, we’ll keep helping them.From:Orlando, FLWeb Site: FibroFixEmail: annehillebrand@bellsouth.netLisa P GarlandWednesday, 10/26/05, 6:01 AMJust a note to say hello to Anne, Dale, and Miss Sassy! So glad to hear that you are all well and safe in spite of MotherNature! I am still doing well and happy and somewhat sassy myself! Thank you Anne for all of your help, your love and your willingness to share your wealth of information on fibro with the world! It certainly has saved and changed my life!!!! Life truely is better the second time around! If you are new to the “fibro-fix family” then hang in there; keep with the program; and get ready to feel better than ever! With love and endless gratitude, LisaFrom:Morganton, NCEmail: lisa28655@peoplepc.comAnne & Dale & Miss Sassy BelleMonday, 10/24/05, 8:28 PMThanks so much for all the emails asking how we are doing following Hurricane Wilma’s wild ride through Florida. We are not there at the moment; we are very high and dry in the Wasatch Mountains of Utah. Neighbors say all is well at home in Orlando, but that south of us took a licking again. Thanks again - and try to help all who are not so fortunate as we are. Annie, Dale and Miss Sassy Belle Devereaux dog.From:OrlandoEmail: annehillebrand@bellsouth.netMonikaSunday, 10/23/05, 10:59 AMHi again, I don’t think I signed your guestbook yet. So here it is! I also wanted to tell you how great I think it is that you are trying to help others like you do. Saying this I think you fit right into our group. Please check us out by going to our homepage:http://creative-dream.com/harmony/harmonyofsouls.htm or simply click the tag below and if interested, fill out the webring submission form. Harmony of Souls support the values of tolerance and equality amongst people of different background, cultures and colors. <p align=”center”> <a href=”http://creative-dream.com/harmony/harmonyofsouls.htm”> <img border=”0” src=”http://www.creative-dream.com/HOS/Artistry/embassy/gateway/invite1.jpg” width=”300” height=”275”></a>From:La Crosse, WIWeb Site: RoadangelEmail: monikascott@charter.netBobbi BiggsFriday, 10/21/05, 8:56 AMWhat I like about your site is that you are not trying to make money...you give information only. It makes me more willing to try your “treatment”. I will take the info to my Dr. and see what she has to say. Will let you know my results.From:Pensacola, FLEmail: biggsbl@cox.netDia NordstromTuesday, 10/18/05, 6:34 AMHi, It’s Dia, your flight attendant on Delta to Salt Lake. Thank-you for all the info and I will pass it on. Just reading it now. If you want to share more of the story we were sharing I would like to hear from you, I passed a Church sign on the way home and it said” Sometimes God has to break you to remake you”. I found this true for myself and it has alot of self intropect for the way we view our personal outlook. I really think God has Angels on missions here and you look and sound the message. God Bless and hope to hear from you. Dia Nordstrom Oct.18,2005From:Casselberry,FloridaEmail: Fly2Dia@aol.comMarge ArnoldMonday, 10/17/05, 11:58 AMI came upon your site today and plan to try your treatment plan. It makes as much sense as anything I have found. I will speak to my doctor about the prescriptions I want to try when I go back next time. In the meantime I will try the tums and over the counter stuff.From:Wisner, LouisianaEmail: mrnold@fpsb.usAnne HillebrandSunday, 10/16/05, 8:51 PMCan answer email right now, but not click on guest book entries to send to you. Glad you found us. Keep us posted on how you are doing. You can reach by cell phone 407-925-4139 or annehillebrand@bellsouth.net.Email: annehillebrand@bellsouth.netDebbie A. HopperSunday, 10/16/05, 7:20 AMI read your whole story and was so moved and I am so Happy for you . I am going thru a very dificult time right now too and hope my ending story can be written as good as yours, although I am a Christian already I still have alot to learn. I have terriblepain and fatique from FM and just found out I am hypoglocimic and do not know what to do first to help myself but hopefully God lead me to your website for answers. God bless you !! I lived in Ada once several years ago.From:McAlester, OklahomaEmail: dhopper@cwis.netIRIS GONZALEZSaturday, 10/8/05, 4:51 PMHI, THIS IS IRIS THE WIFE OF YOUR MAILMAN (IZZY) IM USING HIS E MAIL ADDDRESS BECAUSE HE GOES ON THE COMPUTER MORE OFTEN. I WANT TO KNOW THAT BY HAVING FIBRO DOES THAT INTESIFY OTHER PAINS AS WELL. SUCH AS A TOOTHACHE. TO THE POINT THAT NO AMOUNT OF PAIN KILLER WILL WORK OR ANTI-BIOTIC NO MATTER HOW POWERFUL THE PAIN KILLER IS I HOPE TO ONE DAY CHAT WITH YOU VIA PHONE OR IN PERSON.MANY THANKS FOR YOUR INFORMATIVE WEBSITE AND MAY OUR LORD CONTINUE TO BLESS YOU IMMENSLEY GOD BLESS YOU IRIS GONZALEZFrom:KISSIMMEE FL.Email: izzwa@yahoo.comBonnie MillikenSaturday, 10/8/05, 9:51 AMHi Annie -Thanks for recognizing my cough at the Thriftstore and informing me about this site. It is wonderfully full of information. I will pass it on. God bless you and your today and forever!From:Apopka FloridaEmail: bonniemilliken@earthlink.netAnne HillebrandTuesday, 10/4/05, 7:51 PMWe just had the 77,000th “hit” to www.FibroFix.com. Millions need help. The site is free. Thanks so much to those who spread the word. Annie and Daleemily spiveySunday, 10/2/05, 5:37 AMI have FMS and RA, and try to read everything I can find on both. I presently don’t take any prescription meds, by choice.From:AlabamaEmail: ereese@caec.comtressaFriday, 9/30/05, 6:49 PMmaybe laterFrom:texasEmail: otgis50@aol.comTammi BetzFriday, 9/30/05, 1:43 PMAnne: I found your site and decided to give it a try. I was diagnosed with Fibro 20 years ago and have had symptoms most of my life. I have tried all of the “conventional” treatments (lots of combinations of different drugs) and do not do well with any of them. I suffer from severe IBS as a result of the Fibro also. My pain level had gotten to a consistent 7 or 8 on the scale of 1 - 10 and I had to try something. I work fulltime and need to figure out a way to “keep on keeping on”! I went to my doctor and got his approval for the treatment and he supports it fully. I have been taking the Musinex because I have not received my order from the website you listed. I am taking Zoloft instead of Paxil becuase I had taken Paxil before and did not do well on it. I do feel better. I have been following the program for 2 weeks and I would say that my pain level is now 2 - 3! Quite an improvement from 7-8! One question: Is it safe to take so many Tums? I take thyroid medicine in the am and it says not to take antacids for 4 hours before or after - so I start my Tums at noon. The package says not to take more than 8 a day for a 2 week period. What is your take on this? And lastly, thank you for this site and sharing your discoveries with our fellow Fibro sufferers!From:Houston, TexasEmail: tammibetz@swbell.netLisa ChuzasWednesday, 9/28/05, 12:56 PMI have spent the last few hours reading the fibrofix web site. I am anxious to begin the treatment. I have two other diseases, Moyamoya Disease (MM) and Wegener’s Granulomatosis (WG), so I will need to clear the treatment plan with a couple of Drs. Although the MM and WG have caused me to have mini- strokes, brain surgery and have left me with a tracheostomy. fribromyalgis has been the most disabling. I welcome hearing from anyone who wants to e-mail me.From:Longwood, FLEmail: lchuzas@cfl.rr.commickie rosemanSaturday, 9/24/05, 3:04 PMSuffering greatly wiith CFS/Epstein Barr/Fibro. Please offer help. Thank you.From:new york cityEmail: mickion2@mac.comDusty WilliamsWednesday, 9/21/05, 12:04 PMFrom:Penna.Web Site: sameEmail: krikaley@ptd.netMonikaWednesday, 9/14/05, 10:16 AMAnne, thanks for signing my guestbook. I put a link to your site on mine. I think I was going to do that before and spaced it off. I really have been trouble free for a while and am not worried about anything right now, but if I ever have symptoms again, I might “call” on you. Thanks for trying to help others with your knowledge.From:La crosse, WIWeb Site: Roadangel’s HomepagesEmail: monikascott@charter.netConnie BenbowSunday, 9/4/05, 4:00 PMTHANK YOU ANNE. I AM GOING TO GIVE THIS A TRY. I WILL LET YOU KNOW ABOUT MY APPT. AFTER I SEE THE DOC.From:Winter Park, FLEmail: gabbyconnie@aol.comAnnieSaturday, 9/3/05, 7:57 PMWhich med, kiddo? Get your doc to prescribe Entex LA. Then get added Guaifenesin over the counter or mail order. (see Google). Fludan.com is least expensive I have found. Keep in touch.Email: annehillebrand@bellsouth.netKaren MokasFriday, 9/2/05, 3:16 PMHello Annie, I have been on this trail (cloppity- clop stunble )I am 60 yrs old and am on disability. I took your info to my doctor and the only problem I have is gettin one of the meds. I am feeling “different” so I will keep on, keepin on. I am glad I found this site. Thank you for all the good you do..KarenFrom:Lancaster, OhioEmail: i amkaren07@sbcglobal.netAnne HillebrandWednesday, 8/31/05, 12:41 PMYou are welcome; you are the reason this site is here. Please tell others about it. I promise if they come, we will help them. “Until they ALL get help, we go broke, or we drop dead trying” - William Dale Hillebrand. The finest man I know.CarynWednesday, 8/31/05, 12:28 PMThanks for all the help and personally sending me info when I’ve had a query. You inspire!! Best regards CarynFrom:South AfricaEmail: wayne-caryn@yebo.co.zaAnne HillebrandTuesday, 8/30/05, 3:06 PMOne of our newest “FibroFixers” reports that Dollar General Stores has their own brand of 10 mg Phenylephrine for 18 tablets for $1. “Nasal Decongestant PE”. Right next to the Sudafed PE. Thanks for sharing, Becky! And congratulations on your new life!Anne and Dale HillebrandTuesday, 8/30/05, 2:51 AMThanks so much to all who have written to ask if our #1 son and wife in Mobile, AL are doing ok. Yes, we are very blessed. They married two weeks ago, have purchased and moved into their home near Mobile, AL. The couple, her grown son who lives with them, the family dogs and their home are all just fine after the storm. #1 says that they didn’t even lose any of their trees. They were here weekend before last and we had a great time. They had originally picked Sept 3 and a bar-b-q party at home in Mobile for their wedding, but decided to go ahead and get married. It is a real blessing that they did. They are without power, but so are many people throughout the area. Our hearts go out to all those who have lost loved ones, homes and jobs to Hurricane Katrina. Anne has a pal, Roger “Road King” Graham who is working for a movie services company in New Orleans. He had planned on being there through a couple of more films. I was not able to reach him by email. It would be nice to hear from him. Annie and DaleFrom:OrlandoEmail: AnneHillebrand@bellsouth.netSue Ellen BibbMonday, 8/29/05, 4:03 PMHow kind and good your website is.Thank-YouFrom:Phoenix,AZEmail: mrstireguy@msn.comAnne HillebrandMonday, 8/29/05, 12:51 PM“One thing I have learned after all these years, and through many letters that I receive, what works for one of us may not work for the other.” That is an old saw that doesn’t cut it anymore. What works for me is also working for hundreds and hundreds of others. “And that each of us is constantly looking for the ‘Fix’ that will make us well. Of course as much as we wish, we know we will never be well.” I am well. Hundreds of others are well. But if you want to stay sick, that’s an option. If you are sure you can never get better, I am sure you are right. Don’t try any simple free tricks to stop pain and move and think better. That would be a waste of time for you.From:Orlando, FLEmail: annehillebrand@bellsouth.netGlenda (CCsLilSis)Monday, 8/29/05, 11:41 AMHi Anne, Found your web site through an Email you sent to my address. Really enjoyed looking over your site. I am now going on my 35th. year of being ‘Blessed’ with Fibromyalgia. When I was FINALLY diagnosed, I went to the library and founf only 1 paragraph about ‘Fibrositis’..which it was called at that time. One thing I have learned after all these years, and through many letters that I receive, what works for one of us may not work for the other. And that each of us is constantly looking for the ‘Fix’ that will make us well. Of course as much as we wish, we know we will never be well. Without pain, even for short periods would make me ‘Proud as Punch’.I am so thrilled that what you are doing is working for you. I had to go to alternative methods of pain reduction 7 years ago when I became chemically senstive to most all meds, both prescribed and OTC. I’m happy to find there is much more research being done now in the past few years. Maybe not in my lifetime, but I do pray they will one day find a cure. Good luck to you. GlendaFrom:Missouri OzarksWeb Site: Fibromyalgia Talks To You!Email: fibrotalks@yahoo.comAnneMonday, 8/22/05, 6:03 PMTonight the hit counter will probably pass 74,000. Thanks to all who continue to spread the word. On the last day, Jesus will say to those on His right hand, “Come, enter the Kingdom. For I was hungry and you gave me food, I was thirsty and you gave me drink, I was sick and you visited me.” Then Jesus will turn to those on His left hand and say, “Depart from me because I was hungry and you did not feed me, I was thirsty and you did not give me to drink, I was sick and you did not visit me.” These will ask Him, “When did we see You hungry, or thirsty or sick and did not come to Your help?” And Jesus will answer them, “Whatever you neglected to do unto one of these least of these, you neglected to do unto Me!”Email: annehillebrand@bellsouth.net